Heartless

blizzardPETERBOROUGH — Sweet Grace Wood is one gutsy fighter.

Grace, 11, was born with DiGeorge syndrome, a rare chromosome disorder that results in congenital heart defects and other severe disabilities.

Grace’s airways are so constricted, she breathes as if through a cocktail straw. An abnormality with her vocal cords means she speaks in a whisper. It’s miraculous she can make any sound, doctors say. She’s had three open-heart surgeries and a tracheotomy and spent the first four months of life in hospital.

All the same, the family refuses to treat her like a china doll. Grace attends regular school and takes part in most activities, although she has to use a wheelchair as she can’t walk long distances.

Throughout her short life, doctors have told her parents they should give up on their daughter. Every time they say that, Grace beats the odds. Fights back. Proves them wrong.

These days, though, Grace isn’t just fighting her daily battle for survival.

Her parents, John and Sandy, are battling government bureaucracy. They’ve been cut off from a $410-a-month provincial allowance for children with severe disabilities.

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2 Responses to Heartless

  1. Her brave, loving, nurturing parents and family should take her to the exhumed body of Father Solanus Casey in Detroit.  Fr. Casey, now venerable Fr. Casey, 1870 -1957, had the gift of healing during his lifetime, having counselled close to a quarter million people. 

    When they exhumed his body after thirty years of internment, though the inside of the casket was corrupted due to the water table risings in the area, the body and flesh were pink and his light blue eyes lifelike.  He had suffered from a type of total body excema which was very painful toward the end of his life, however this condition was no longer present in the exhumed body. 

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  2. Pingback: ON gov’t cancels help for child with disabilities

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